Minor participation is a form of involvement in a project, typically on a smaller scale than major participation. It is also referred to as limited participation or small-scale participation. Minor participation can involve a variety of activities, such as providing input, working as part of a team, attending meetings, and offering advice. There are three main types of minor participation: 1. Advisory: Advisory minor participation typically involves providing input or advice on a particular project or issue. This type of involvement generally takes place before the project is fully underway and may involve attending meetings and providing feedback. 2. Collaborative: Collaborative minor participation involves working as part of a team on a particular project or issue. This type of involvement typically involves attending meetings and working with others to complete tasks or activities related to the project. 3. Monitoring: Monitoring minor participation typically involves attending meetings and providing feedback and updates on the progress of the project. This type of involvement generally takes place throughout the life of the project and involves keeping track of milestones, progress, and other relevant information.
MINOR PARTICIPATION
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FAQ
Legally, children are not able to give true informed consent until they turn 18. So, before taking part in a clinical trial, they are asked for their assent. Assent means that they agree to take part. They may also dissent, which means they do not agree.
Parental permission protects the child from assuming unreasonable risks. Assent demonstrates respect for the child and his developing autonomy. In order to give meaningful assent, the child must understand that procedures will be performed, voluntarily choose to undergo the procedures, and communicate this choice.
California Family Code provides that a minor may, without parental consent, receive services related to sexual assault, pregnancy and pregnancy-related services, family planning, sexually transmitted diseases, drug and alcohol abuse, and outpatient mental health treatment and counseling.
Participants between the ages of 6 and 17 are asked to sign assent when taking part in any research project. If a child refuses to sign an assent form, the research cannot proceed even if consent has been granted by the child's guardian.
The IRB has the discretion to judge children's capacity to assent for all of the children to be involved in a proposed research activity, or on an individual basis.
Minor consent laws allow young people aged 12 and over to consent to certain services without parent or guardian involvement. Minors may consent to certain services related to sexual and reproductive health, mental health, and drug and alcohol treatment.
Thus, parents can provide informed consent only for themselves. Minors cannot provide informed consent unless they have been judged to be able to act as adults for that purpose (see the discussion below of emancipated and mature minors).
Assent means a minor's (e.g., child, youth, adolescent under the age of 18) affirmative agreement to participate in research (45 CFR 46.402(b)). To assent, the minor must actively demonstrate a continued willingness to participate in the research, and not just comply with participation directions.